Polycystic ovary syndrome support groups and their role in awareness, advocacy and peer support: A systematic search and narrative review

Polycystic ovary syndrome (PCOS) is a common and distressing condition in which women often lack adequate support and information to achieve the best health and well-being outcomes. PCOS support groups provide evidence-based information, provide peer support, raise awareness and advocate for woman-centred care. We summarise recent evidence and provide reflections from PCOS support group leaders. Women seek and receive information, as well as emotional and social support, from support groups. They report benefits such as confidence to manage the condition, having greater agency in their healthcare. Some support groups have long-standing partnerships with healthcare providers and researchers, making substantial contributions to advocacy and raising awareness. Major opportunities exist for healthcare providers, professional societies and support groups to collaborate, improving the availability of evidence-based information through support groups.