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Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics?

journal contribution
posted on 2022-09-11, 21:41 authored by Li Du, Shmuel BecherShmuel Becher
Telegenetics, the application of telemedicine in the context of genetic services, is a growing market. One of the recent developments in this field is the use of direct-to-consumer (DTC) marketing to promote and advertise genetic and genomic consultant services to consumers. Using Google.com, we identified providers that promote their telegenetics services online. By analyzing their websites, we identify and examine key points regarding DTC telegenetics: how are telegenetics services portrayed, how is informed consent obtained, and what protections are offered to clients’ personal health information? We found that the portrayal of a wide range of telegenetics services on providers’ websites is extremely positive. The risks associated with the implementation of telegenetics were rarely mentioned. Consent forms were often unavailable and did not cover all of the relevant information. The measures for protecting clients’ personal health information by telegenetics providers were found to be generally inadequate and weak. We concluded that DTC telegenetics may increase patients’ access to genetic counseling with affordable costs. However, before further developing DTC telegenetics, more research and regulatory improvements are required to guarantee truthful advertising, ensure informed consent, secure personal health data sharing, and warrant adequate privacy protection.

History

Preferred citation

Du, L. & Becher, S. (2018). Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics? Frontiers in Genetics, 9(December). https://doi.org/10.3389/fgene.2018.00550

Journal title

Frontiers in Genetics

Volume

9

Issue

December

Publication date

2018-01-01

Pagination

(8)

Publisher

Frontiers Media

Publication status

Published

Contribution type

Article

Online publication date

2018-12-03

ISSN

1664-8021

eISSN

1664-8021

Article number

ARTN 550

Language

en